What Does Recovery from an Eating Disorder Mean?

 

 


By: Judy Scheel, Ph.D., LCSW

 

Most outcome studies for eating disorders focus on symptom reduction as the indicator of recovery.  In a recent article in the “Eating Disorder Review (Gurze: March/April 08, Vol 19, No 2), Dr. Scott Crow, MD, Professor of Psychiatry at the University of Minnesota stated in a speech made at the 2007 Renfrew Conference that focusing solely on weight restoration in Anorexia Nervosa is “perilous” when it is considered the only variable to measure recovery.  Most behavioral inpatient and outpatient treatment programs consider weight restoration as the prime indicator for recovery for Anorexia Nervosa and cessation or significant reduction in purge episodes as a measure for recovery for Bulimia.  As such, they are generally able to claim success in the short-term.  Insurance companies routinely dictate reimbursement for care based on weight and purge activity for Anorexia and Bulimia respectively.  These concrete variables (weight increase and decrease in purging) enable the insurance company to grant or decline continued care.     Needless to say, weight restoration is the most cost effective means for insurance companies to cease payment of benefits; once weight has increased to the point that the patient is out of medical danger, benefits are quickly cutback or terminated.  This is part of the issue why so many excellent in and outpatient eating disorder programs do not have contracts with insurance companies.

 

What drives the likelihood that a patient will maintain or continue to increase weight or continue on the path of decreasing purge activity is the improvement in the issues that underlie the eating disorder.  Dr. Crow in his presentation stated that Quality of Life and Functional States need to be considered as well when assessing recovery in a patient.  

 

Quality of life includes the ability to enjoy food, having meaningful relationships, employing solid self-care, experiencing enjoyment in life and the pursuit of pleasurable activities, the ability to tolerate negative emotions in an experiential way without resorting to symptoms, the ability tolerate down time and in having good cognitive functioning (i.e. sound judgment, rational thinking and decision making, limited distorted thinking and perceptions about weight and body and in most arenas of life.)

 

Functional States include the degree of productivity and reliability at work and school and the ability to perform to one’s capability despite “negative self-talk” (i.e. I am too fat, I should not leave the house because I feel fat etc.)

 

How do you know if someone is recovered?

 

As mental health is a continuum, so is recovery.  Let’s give an example of Mary, a 35-year-old woman who struggled with Bulimia for 15 years and has not had any purge episodes (vomiting) for the past 6 months.  Is Mary recovered?  Would she be “more” or “really” recovered if she were a-symptomatic for two years versus six months?  Let’s say Mary has a triggering episode in her life, which in the past would have led her to binge and purge, but this time she is able to avoid resorting to past symptomatic behavior.  Does this now mean that she is recovered because she was not triggered?  Let’s say Mary is best able to remain symptom free if she does not keep any of the food in her house that acted as triggers in the past, but she can eat some of these foods when she goes out to eat.   Is she recovered?  Let’s say she is never able to eat any of the past triggering foods, but is able to eat a full range of other nutritious food.  Is this recovery?

 

If outcome studies focus only on weight restoration as the criterion for recovery in Anorexia Nervosa, then studies indicate great success.  If treatment success is extended to include other variables like the desire to eat, greater pleasure in life, healthy relationships, less distorted thinking about effects of food and body image then incidence of recovery drops dramatically.   Since studies that focus on weight restoration are generally conducted at time of discharge, success is more likely guaranteed. Longer term recovery, which focus on weight restoration and symptom reduction, as the only measures of outcome tend to be less successful.  Symptom reduction is perhaps not the significant factor that predicts longer-term recovery. 

 

What predicts longer-term recovery?

 

The variable most significant to those of us who provide solid psychodynamic/relational and CBT treatment is TIME.  Eating Disorders take time, often lots of time, for recovery to be long and lasting.  A sparse few published reports are indicating that longer term and integrated treatment (therapy, nutritional and medical care) are greater predictors of overall success; something those of us in the clinical trenches in the treatment of eating disorders have known for YEARS.  Insurance companies, take note!

 

I believe, as many of us who have been treating eating disorders for a long time believe, that interpersonal issues, which are a cornerstone in understanding etiology and treatment of eating disorders, can only be assessed and dealt with in a longer-term therapy.   The stronger a patient’s self esteem and self worth and the healthier her relationships, which take time to address in therapy, the more likely she will be to have increased and lasting recovery  

 

Treatment approaches continue to be multifaceted; we need to view recovery similarly.  Behavioral treatment is only as good as the context/environment in which it is provided.  Dynamic psychotherapy is weak without the use of CBT. 

 

It is important to remember that relapse is a NORMAL part of recovery.  Like the “onion” metaphor indicates, there are layers to go through each peel leading closer to the center.  Perhaps each person’s recovery “center” is different.